Carolyn Jones, best known for her socially proactive photographs and documentary films, shares what makes nurses not only an invaluable asset to us as patients, but also as a society.
Carolyn Jones, best known for her socially proactive photographs and documentary films, shares what makes nurses not only an invaluable asset to us as patients, but also as a society.
En español | MEDICARE WORKS WONDERS for millions of American families, providing affordable access to today’s most advanced health care. Poll after poll invariably confirms its popularity. But will Medicare continue to work for us and for the next generations? That’s the question that Congress and the Trump administration will be asking in the coming months.
At AARP, we continue to believe passionately in this program, which has allowed our citizens to age with dignity. In this special report, we detail what the state of Medicare is today and provide what you need to know about the upcoming debate in Washington over the nation’s most important health care program. — Robert Love, AARP Bulletin editor in chief
by Bill Walsh
As Donald Trump was mounting his insurgent candidacy for president, he repeatedly set himself apart from the Republican field by vowing to protect the Social Security and Medicare Americans have come to know.
He assured older voters, who proved to be a decisive voting bloc, that those programs would remain intact and the benefits delivered as promised.
“Every Republican wants to do a big number on Social Security. They want to do it on Medicare. They want to do it on Medicaid. And we can’t do that,” he said at a New Hampshire rally during the primaries. “It’s not fair to the people who have been paying in for years.”
Yet within days of Trump’s historic election, the guaranteed health coverage provided by Medicare was cast in doubt. House Speaker Paul Ryan (R-Wis.) revived his plan to replace it with a fixed-dollar subsidy that beneficiaries would use to buy private health insurance. Meanwhile, Congress is expected to move quickly to repeal the Affordable Care Act (ACA), which could have the effect of erasing the consumer-friendly Medicare benefits that the law created.
As news of Ryan’s proposed Medicare overhaul spread, it stirred fears among the 57 million beneficiaries who rely on it to cover prescription drugs, doctor visits and hospitalizations. Democrats lined up to pledge their opposition. It also prompted an outcry from consumer groups, including AARP.
What remains to be seen in January, as Congress reconvenes and the president-elect takes office, is how Trump’s campaign assurances to protect Medicare will hold up against House lawmakers intent on revamping the popular health program.
Trump contributed to the uncertainty by announcing House Budget Committee Chairman Tom Price (R-Ga.) as his pick to run the Department of Health and Human Services. Price has been an advocate of Ryan’s Medicare approach, which supporters call “premium support” and critics decry as a “voucher system.” Trump’s website further raised questions about his plans for Medicare. It says he wants to “modernize Medicare,” which is often seen as Washington code for the type of changes Ryan wishes to make.
Since the election, Trump has not made any comments about Medicare. But in an interview with ABC News on Dec. 4, Vice President-elect Mike Pence said Trump “made it very clear in the course of the campaign that we’re going to keep our promises in Social Security and Medicare.”
Ryan’s Medicare overhaul, a version of which passed the GOP-controlled House, would fundamentally change how Medicare works.
Since its creation in 1965, Medicare has been a “defined benefit” program, guaranteeing a certain level of health coverage. It now pays about 80 percent of costs associated with doctor and hospital visits. Beneficiaries are responsible for paying monthly premiums, copayments and annual deductibles.
Ryan would convert Medicare from a “defined benefit” to a “defined contribution” program. Instead of a guaranteed level of coverage, a dollar amount would be set for Medicare beneficiaries to pay premiums on insurance they would buy from private-sector companies (this is why Ryan calls it “premium support”). Ryan’s plan would also increase the eligibility age from 65 to 67.
A former chairman of the House Budget Committee, Ryan wants to limit how much the government spends on Medicare. In 2015, Medicare accounted for 15 percent of the federal budget, a proportion expected to grow as the number of beneficiaries rises.
“The reforms we’re talking about do not affect the benefits for anyone in or near retirement,” Ryan said last month. “But for those of us in the younger generations, it won’t be there for us if we stay on the current path.”
Consumer advocates also want to address growing costs in the health care system, including Medicare. But they contend that Ryan’s approach would erode much-needed coverage and shift costs to many who live on fixed incomes and continue to struggle in the shadow of the Great Recession.
While Ryan says the annual subsidy would be greater for low-income people, critics say it is unlikely to keep pace with the rising costs of insurance. The result, they say, is that beneficiaries would shoulder more of the financial burden — or go without needed medical care. Although Ryan also says people would be allowed to stay in traditional Medicare, critics argue his approach is designed to gradually increase out-of-pocket costs in the program and nudge beneficiaries into private plans with no guaranteed level of coverage.
Opponents also say that there are better cost-saving options available. One of the most popular is giving Medicare the authority to negotiate prescription drug prices directly with drug companies. The change would help the federal government control a cost that accounts for $1 out of every $6 Medicare spends. That idea was supported by more than 80 percent of people in a Kaiser Family Foundation poll in 2015. As a candidate, Trump also embraced the idea, another potential point of friction with House Republicans, who generally oppose it, as does the pharmaceutical industry.
What Trump and GOP leaders wholeheartedly agree on is that the first order of business will be repealing the Affordable Care Act, also known as Obamacare. Republican congressional leaders want a repeal vote in January so that a bill can be on the president’s desk right after he is sworn in.
Although it has received little attention, a full repeal of Obamacare would eliminate Medicare benefits created by the law. Among other things, it improved Medicare’s financial outlook by slowing the growth of spending and clamped down on fraud, waste and excessive payments. It also enabled tens of millions of Medicare beneficiaries to get free preventive services such as flu shots and screenings for cancer and diabetes. And between 2010 and 2015, nearly 11 million Medicare beneficiaries saved $20.8 billion on prescription drugs—an average of $1,945 per person — because of the gradual closing of the coverage gap known as the doughnut hole.
While Obamacare remains controversial — in part because of its mandate to purchase health insurance and because premiums have increased for some plans—the Medicare provisions have proved popular with beneficiaries.
Even in an era of hostility toward the federal government, support for some programs has remained strong. A Kaiser poll found that 77 percent of people say Medicare is a “very important” program, just below the level of support for Social Security at 83 percent.
Trump’s campaign assurances about protecting Medicare and Social Security undoubtedly played a role in his Election Day victory, especially among older voters. Those 65 and older supported him with 53 percent of the vote, compared with 45 percent for Democrat Hillary Clinton, according to the Pew Research Center. There will be a lot at stake for them when Congress reconvenes.
Our country’s 40 million unpaid family caregivers devote a large portion of their own money toward the care of their loved ones.
They’re spending an average of $6,954 a year — nearly 20 percent of their income — on out-of-pocket (OOP) costs related to caregiving, according to a new AARP study, “Family Caregiving and Out-of-Pocket Costs: 2016 Report.”
Hispanic/Latino and low-income family caregivers spend even more: an average of 44 percent of their total annual income.
And that’s on top of other financial strains many caregivers face, such as needing to cut back on work hours or take unpaid leave, says Nancy LeaMond, Chief Advocacy and Engagement Officer at AARP. “The strain can be enormous and may put their own financial and retirement security at risk.” She adds that passing the bipartisan Credit for Caring Act, which provides a federal tax credit of up to $3,000, “would give some sorely needed financial relief to eligible family caregivers.”
AARP also supports the bipartisan Recognize, Assist, Include, Support and Engage (RAISE) Family Caregivers Act, which would require the development of a national strategy to support family caregivers.
Here are some striking findings from the new AARP report, which determined the amount of money that family caregivers spent over the last year:
Family caregivers report dipping into savings, cutting back on personal spending, saving less for retirement or taking out loans to make ends meet. More than half of family caregivers reported a work-related strain, such as having to take unpaid time off.
Read the full report at www.aarp.org/caregivercosts.
Whether you’re a first-time Medicare buyer or a long-time enrollee, finding the right Medicare coverage can be confusing.
In an effort to help you find the right combination of plans, we’re answering the top consumer Medicare questions, including what your first step should be, your prescription drug coverage options, and much more.
In order to complete your Original Medicare coverage and enroll in Part B, you must contact the Social Security office and actively enroll. Once you have both Parts A & B, you can complete your Medicare coverage with additional options.
A Medicare guaranteed issue right is your right in certain situations to be granted a Medicare Supplement plan – or Medigap policy – regardless of certain other details concerning your health. In these specific situations, insurance companies must sell you a Medicare Supplement plan, cover all your pre-existing conditions, and not charge you more for a policy because of any health problems. Most commonly, you may have a guaranteed issue right if you lose coverage or your current health coverage changes.
If you only have Part A, you are eligible to also get Part B. You cannot move forward with exploring other types of Medicare coverage until you have both Parts A & B.
Unfortunately, you cannot. In order to move forward with additional Medicare options (including Part D), you must first have both Parts A & B.
If you need prescription drug coverage, you have a few different options. Once you get Parts A & B, you can choose to switch to Medicare Advantage, which sometimes offers prescription drug coverage. You can also choose to enroll in a Prescription Drug plan – or Part D – which offers different coverage options depending on which drugs you take.
You can call Social Security, and a representative there can help you locate your Medicare claim number.
You should call your state’s Medicaid department if you’re interested in Medicaid health insurance coverage.
Medicare Supplement – or Medigap – plans help you complete your coverage. They can help you pay for health care costs that may not be covered by Original Medicare, such as copayments, coinsurance, and deductibles. Medicare Advantage is a private health insurance option that is required to cover all the same benefits as Parts A & B, plus additional benefits, such as prescription drug coverage. You cannot have a Medicare Supplement plan and Medicare Advantage at the same time.
While they are similar, there are also differences between Medicare Advantage and Original Medicare. By law, Medicare Advantage plans are required to cover all the same benefits as Original Medicare, or Parts A & B.
However, there may be some differences in how you pay your out-of-pocket costs with a Medicare Advantage plan, or you may have a smaller or larger deductible. There also may be some differences in the coverage itself. For example, while Original Medicare does not cover prescription drugs, some Medicare Advantage plans do offer that coverage.
There are many different types of Medicare coverage available to help you avoid any gaps in your coverage. It’s important to explore all of your options and coverage combinations with a licensed agent.
Call 1-877-568-1851 – TTY 711 to speak with one of our licensed sales agents. To enroll in Original Medicare, please contact your local Social Security office.
Medicare has neither reviewed nor endorsed this information.
GoHealth Answers Your Top Medicare Coverage Questions posted by GoHealth
The Veteran’s Aid and Attendance (VA&A) Pension provides benefits to veterans and their spouses to help pay for costs of care – both in-home care and senior housing. At A Place for Mom we work with many families who are not aware of the benefit and miss out on key financial support that help pay for senior living and home care expenses.
The benefit is anticipated to change next year and could impact the number of families eligible for this financial support. We encourage families to take action now to determine their eligibility.
We anticipate the payout to be consistent with current level, however, we believe the eligibility requirements will change.
– $80,000 or less in total assets with the exception of one home and one vehicle.
The VA has provided guidance that the eligibility requirements will change in 2017.
It is to your advantage to apply today.
Veterans benefits provide those who have served their country, as well as their spouses, financial assistance during their retirement years. Veterans who are at least 65 years-old* and who served during war time (though not necessarily in actual combat) may be eligible for financial assistance through the Department of Veteran Affairs (VA) that can be used to help pay for care. Spouses and surviving spouses of wartime veterans are also often eligible. Veteran’s benefits can make all the difference for families who struggling to pay for care.
For further reading:
Originally Posted in the Senior Living Blog: Posted On 24 Oct 2016
The United States has a proud democratic tradition dating back more than 200 years, and that tradition is based on the right to vote. Unfortunately, many older people who are receiving care at senior living communities aren’t always able exercise that right.
Seniors may be intimidated by the thought of getting to the polls and potentially waiting in long lines. Some might even wonder whether, as long term care residents, they’re still allowed to vote. Learn more about how to escort seniors to the polls during this election.
On Tuesday, November 8, 2016, U.S. citizens will vote and determine the direction of our country.
This year, senior advocacy organizations are making sure senior living residents’ voices are heard and votes are counted:
Senior living and other long-term care providers can help residents vote, by:
We applaud these efforts and believe it’s vitally important that every citizen have the opportunity to make their voice heard.
If you are concerned that a senior loved one who lives in senior living may not be able to exercise their constitutional right to vote, contact your local Long-term Care Ombudsman for assistance.
For more information about polling locations and other election related matters where you live, visit the USA.gov Voting webpage.
Do you have experience escorting senior loved ones to the voting polls? Do you have any tips that you’d like to share? We’d love to hear your stories in the comments below.
Original Article Featured in OR Today Magazine, November 2016 Edition
Do you believe that workplace bullying and incivility are the same?
No. Workplace incivility can best be defined as low-intensity unpleasant behavior that is rude, impolite, or inconsiderate. While the target can feel insulted or angry; an actual desire or intent to harm the other person is ambiguous. Anyone has the potential to behave inappropriately towards a coworker given the right circumstances coupled with a lack of self-management.
Workplace bullying however, is ongoing, offensive, abusive, intimidating or insulting behavior or actions directed at a person(s), causing the target to feel threatened, abused, humiliated or vulnerable. The person experiencing prolonged bullying can feel a range of psychological and physiological symptoms. The research supports that, those who bully, are very aware of their behavior and its effect on the others; even though they may deny that there is intent. Fortunately, there is only a very small percentage of the workforce that is capable of such sustained disregard for another individual.
So these behaviors are very different. Should the management be different as well?
Yes, they should and I want to be clear as to why. The two keys here are insight and sustainability. The person who behaves in an uncivil manner has the ability to self-reflect on that indiscretion, feel remorse or regret and make the active choice to work on their self-management skills and achieve personal growth. A bully does not have this ability.
It is vital that we understand and accept that a nurse bully is a narcissist with a license. A narcissist lacks the capacity for empathy. The ability to reflect empathically on the consequence that one’s poor behavior has on another is vital for driving the desire to change. Bullies (narcissists) are incapable of this.
An uncivil staff member can gain insight though coaching and training. Positive, sustained changes in behavior can be noted within six to twelve weeks of working a clear emotional intelligence improvement action plan. A narcissist typically reacts in one of two ways to someone attempting to hold them accountable. They may escalate their behavior and retaliate or they will tell you what you want to hear and vow to reform. However, they cannot sustain any improvement because they lack a connection with the need to improve.
So why is managing bullying behavior in nursing so challenging?
This is a complex issue but one reason is that nurses are professional caregivers. Nursing leaders have a good deal of difficulty coming to terms with the fact that a bully/narcissist cannot be fixed. It is not a part of our caregiver DNA to “give-up” on someone. We talk ourselves into believing that if we just try a little harder that this individual will have an epiphany and the problem will be resolved.
The bully/narcissist is hoping that you will react exactly in this manner. They are experts at taking your wonderful qualities of empathy, patience and the need to heal and use them against you to achieve their goal of never being held accountable to sustained improvement. Essentially, we need to get out of our own way in order to take charge of this situation. Nurse leaders must try to accept that once someone shows you their true colors, you need to resist repainting them.
The only performance improvement plan for a bully/narcissist is a collaborative effort put forth by administration, human resources and the nurse leader that is time sensitive and rich with mandatory training. The documentation should discuss the need for improvement to be demonstrated within three to six months then sustained for six months as well.
Most bully/narcissists will not be able to withstand this type of scrutiny and may decide to move on. The others may stay but will find it very challenging to sustain the improvement. Should termination be the only option left, you can have the peace of mind that a sincere effort was made on your part; and twelve months’ worth of documentation to support your action.
Medicare is national health insurance that all Americans receive when they turn 65. Disabled people who are under 65 can also enroll in Medicare without paying premiums. Medicare is usually not helpful to those looking for a solution to long term care needs.
Medicare can cover short-term rehab stays at a nursing home, for example, after a hospitalization. It can also pay for rehab and therapy at home for a limited period of time and when prescribed by a doctor.
But it’s vitally important to recognize that Medicare does not pay for custodial care. Medicare should primarily be considered health insurance. This means Medicare does not pay for the following types of senior care:
For more information about Medicare, see http://www.medicare.gov.
Medicaid is the foremost government assistance program paying for long term care for people who can’t afford it on their own. It is administered cooperatively by the federal government and states. While the majority of its funding comes from the federal government, each state has some discretion in its individual rules, regulations and eligibility requirements.
Medicaid is the safety net for Americans who need care that they cannot afford privately. Like Medicare, Medicaid acts as health insurance. But unlike Medicare, Medicaid can be used to pay for long term nursing home care in all states. Many states also allow their residents to use Medicaid to pay for assisted living communities or other alternatives to nursing homes such as in-home care.
Some states even offer a program through Medicaid called PACE (Program of All Inclusive Care for the Elderly), which covers all of the senior’s care and medical needs through one contracting agency, with the goal of allowing people who have traditionally gone to nursing homes to stay in the community (at home) with support.
Each state has its own guidelines, so you will need to contact a State Medical Assistance office for more details:
You may also want to speak with an elder law attorney who can help guide you through the nuances of a successful Medicaid application.
Veterans who are at least 65 years-old and who served during war time (though not necessarily in actual combat) may be eligible for financial assistance through the US Department of Veteran Affairs (VA) that can be used to help pay for care. Spouses, surviving spouses, and even other dependents of the veteran may be eligible for assistance in some cases as well.
There are three levels of VA benefits for wartime veterans and their dependents, which are based on the needs of the applicant.
Assistance from the VA is “means tested,” in other words, only people who are deemed genuinely in need will receive an award. It also means that the amount of the benefit is based on the applicant’s income, assets, and needs. Applicants whose countable incomes are over maximum thresholds (excluding the home they live in and the care they drive), will usually be denied. But in situations that are borderline it can’t hurt to apply, as decisions are largely made on a case by case basis.
Like Medicaid, VA benefits can be extraordinarily complex. For this reason you might also consider speaking with a Veteran Services Officer. Veteran Services Officers volunteer through the United States, frequently at hubs for veterans like American Legion halls Veteran of Foreign Wars (VFW) lodges.
To apply for VA health care or determine eligibility,
Medicaid, VA benefits, and to some extent, Medicare, are government programs that help pay for care for older people in the United States. But there are alternatives. Some families also explore reverse mortgages and life settlements to raise funds to pay for necessary care.
Our Senior Living Advisors are happy to discuss, at no cost, the financial aspect of care planning. They can talk you through the options, and even suggest local experts who can help you pursue financial aid options outlined in this article. Talk to an Advisor in your area today!
Originally featured in Women of Distinction Magazine: September 8, 2016
Q: A good deal of your coaching practice is centered on working with family caregivers. What are some of the challenges facing family caregivers today?
A: Their biggest challenge is to have a life of their own while caring full time for their loved one and not self-destruct in the process. I think it is so important to remember that in most cases, family caregivers never saw this responsibility coming. They didn’t go to school to learn how to be caregivers. They did not make a conscious decision to make a career in caregiving. They responded to a life-changing event, which usually involved a spouse, parent or child. They made the significant changes necessary to be fully present and care for that person. That is not only love and loyalty in action; it is the highest form of generosity. By in large, family caregivers go it alone. What community resources were available are now all but gone since the economic downturn of 2007. So my work with these clients is centered on finding ways to meet their self-care needs and in identifying ways to seek assistance. I am a huge proponent of the care model put forth by The Share the Care Organization. This not-for-profit organization conducts training programs to teach professional and family caregivers how to set up care circles. We usually have a group of friends and neighbors who would like to help but are not capable of rendering physical care. This care model focuses on what people can do. Perhaps you can help with marketing, lawn care, driving to doctor appointments, etc. Creating care circles allow others to help you and your loved one so that the responsibilities of your life do not become overwhelming.
Q: What is your approach to coaching?
A: My approach to coaching is to view my client as whole, competent and capable. I understand how challenging it can be to remain clear and authentic about ones goals and one self as you try to navigate your life. Responsibilities, setbacks and the demands of an adult life can overshadow a person’s understanding of the present and cloud his or her vision for the future. Our very human nature creates blind spots to options and solutions. My goal is to empower my client to access their own innate knowing and personal wisdom. I can support them as they explore where they are now, guide them in clarifying where they want to be, assist them in setting up a timeline, and support them efforts to attain their goals in a nonjudgmental manner.
Q: What is compassion fatigue?
A: It is a condition characterized by a gradual lessening of your ability to render empathic care over time. Those at risk for the development of compassion fatigue include: nurses, social workers, first responders, special education teachers, and the family caregivers of those with chronic illnesses. Symptoms include but are not limited to, a decrease in experiences of pleasure practicing a profession you once loved, a sense of relentless stress, anxiety over the thought of going to work, and a pervasive negative attitude that creeps into all areas of your life. Long term, this can have devastating effects on your work performance and relationships and life.
Q: How can you start a person along the process of recovery from compassion fatigue?
A: Caregivers have a difficult time with the idea of receiving care therefore, acknowledging that you may be experiencing compassion fatigue and seeking help is a healthy first step. Everyone’s journey to the development of the syndrome is unique so there is no such thing as one approach fits all. However, the biggest hurdle to get over is to embrace the fact that you must take just as good care of yourself as you do others. It is vital to approach caregiving from a place of fullness and not try to render care when you are fueling yourself from the fumes of your compassionate nature. The airline industry really gives the best advice. Put your own oxygen on first, and then help the other person. A big part of recovery is to incorporate an adequate rest and self-care regimen into your life. This adaptation should be seen as a treatment for compassion fatigue and as a vaccination against developing the syndrome again.
Q: Why do you recommend a regular mindful practice for caregivers?
A: People who are drawn to human services are perpetual doers. They start doing from the minute they wake up and don’t stop until they fall asleep. They only way to add a sense of balance to that approach to life is to incorporate regularly scheduled times when we are just still and breathing. Doers are always in their head thinking about what they need to do and whom they need to do it for. So taking time to just sit and breathe, so that you are more aware of being in your body rather than stuck in the endless loop of thinking, can offer a much needed break from perpetual doing.
Q: What inspired you to write your book; Rediscover the Joy of Being a Nurse?
A: As I was crisscrossing the country speaking and coaching at various nursing events, I was deeply saddened by the degree of personal pain these nurses were struggling with every day. I felt the need to try to offer some guidance to those who felt so disconnected from something that meant so much to them. The insight the book offers is not centered on anything that we learned in nursing school. Rather, it is focused on the development of three vital life skills: the ability to adapt, the ability to make and sustain relationships and the ability to be resilient. I believe that cultivating these three life skills can help nurses refocus their attention on themselves and what they need to have a content professional and personal life for the long term.
Q: What has been the most successful marketing strategy for you?
A: Developing my relationship within the social networks on LinkedIn. I have found LinkedIn to be the most professional and powerful networking medium. Everyone using this platform is serious and looking to connect with other serious individuals. Engaging on LinkedIn is a commitment of time and effort but the return on my investment has been worth it. Many of my most important opportunities have been offered to me through LinkedIn.
Originally Posted http://www.blogAARP.org on 08/22/2016
After Labor Day, when Congress returns from its summer recess, there will only be 33 working days left for the U.S. House of Representatives before the end of the year. That’s not a lot of time to address some of our nation’s biggest challenges. One item awaiting action that should be an immediate priority is the RAISE (Recognize, Assist, Include, Support and Engage) Family Caregivers Act. This bipartisan, commonsense step to aid America’s greatest support system — family caregivers — is long overdue.
Passed unanimously by the U.S. Senate, the RAISE Act would develop a national strategy to support family caregivers, bringing together stakeholders from the public and private sectors — including state and local officials, health care and long-term services and support providers, employers, federal agencies, older adults, persons with disabilities and family caregivers themselves — to identify specific actions communities, providers, government, employers and others can take, including with respect to: promoting person- and family-centered care in a range of settings; assessment and service planning involving both care recipients and family caregivers; information, education, referral and care coordination; and respite options so caregivers can reset and recharge.
Today, more than 40 million family caregivers care for veterans, parents, spouses, children and adults with disabilities and other loved ones so they can continue to live at home. The unpaid care family caregivers provide — valued at about $470 billion annually — helps delay or prevent more costly care and unnecessary hospitalizations, saving taxpayer dollars.
I know from firsthand experience that caring for a loved one is a tremendous responsibility. While I have much in common with my fellow caregivers, my experience is unique in many ways. Indeed, each of our caregiving experiences is individual, seen through our own personal family lens. Everyday duties can include bathing and dressing; preparing and feeding meals; transportation; handling financial, health care and legal matters; and often complex medical tasks like wound care. Many family caregivers are working full time and raising families. They are often on call 24/7.
That’s why AARP, together with a number of other organizations and family caregivers themselves, is calling for the U.S. House to pass the RAISE Act now.
One such organization, the Elizabeth Dole Foundation, works with military and veteran caregivers. In a recent radio news story, former senator Dole said:
“Five and a half million military and veteran caregivers are caring for loved ones with devastating wounds, illnesses and disabling injuries — visible and invisible. By passing the RAISE Act, we can create an important path forward so military family caregivers, all family caregivers, get the support they need.”
Another group pressing the U.S. House to pass the RAISE Act is Autism Speaks. Executive Vice President of Programs and Services Lisa Goring says:
“Millions of family members are forced to step in as full-time caregivers to keep their loved ones with autism and other developmental disabilities safe and supported. Now is the time for a national strategy to support all family caregivers to ensure their loved ones a better future.”
For me, it’s the stories and experiences of family caregivers that really underscore why the RAISE Act must pass now. Britnee Fergins cares for her father. She says:
“My 91-year-old father, who’s a World War II veteran, requires a lot of attention. I also have a very energetic 3-year-old son — and work 12-hour shifts as a chemist. It’s a constant juggling act, and some days, I’m afraid I’m going to drop the ball.”
Family caregiving is a unique and deeply personal issue that affects just about all of us, wherever we are on the political and ideological spectrum. We are either family caregivers now, were in the past, will be in the future — or will need care ourselves one day.
The RAISE Act would implement the bipartisan recommendation of the federal Commission on Long-Term Care, requiring the development of a national strategy to support family caregivers, similar in scope to the national strategy developed to address Alzheimer’s disease. The need is urgent and time this year is running out.
AARP urges the U.S. House to pass the RAISE Family Caregivers Act now. And I urge you to contact your representative about the RAISE Act today. Call 844-259-9351 or click here.
The following U.S. representatives are cosponsors of the bipartisan RAISE Act as of Aug. 22:
Reps. Gregg Harper (R-Miss.) and Kathy Castor (D-Fla.)
Rep. Lujan Grisham (D-N.M.)
Rep. Black (R-Tenn.)
Rep. Pascrell (D-N.J.)
Rep. Emmer (R-Minn.)
Rep. Pocan (D-Wis.)
Rep. Deutch (D-Fla.)
Rep. Katko (R-N.Y.)
Rep. Pompeo (R-Kan.)
Rep. O’Rourke (D-Texas)
Rep. Amodei (R-Nev.)
Rep. Duckworth (D-Ill.)
Rep. Chu (D-Calif.)
Rep. Schakowsky (D-Ill.)
Rep. Fortenberry (R-Neb.)
Rep. Gibson (R-N.Y.)
Rep. Pingree (D-Maine)
Rep. Bonamici (D-Ore.)
Rep. Napolitano (D-Calif.)
Rep. Lujan (D-N.M.)
Rep. Hastings (D-Fla.)
Rep. Kirkpatrick (D-Ariz.)
Rep. Kuster (D-N.H.)
Rep. Blumenauer (D-Ore.)
Rep. Lofgren (D-Calif.)
Rep. Freylinghuysen (R-N.J.)
Rep. Murphy (R-Pa.)
Rep. Frankel (D-Fla.)
Rep. Dingell (D-Mich.)
Rep. Lee (D-Calif.)
Rep. Brady (D-Pa.)
Rep. Rice (D-N.Y.)
Rep. DesJarlais (R-Tenn.)
Rep. Beatty (D-Ohio)
Rep. Davis (D-Calif.)
Rep. Beyer (D-Va.)
Rep. Roe (R-Tenn.)
Rep. Stefanik (R-N.Y.)
Rep. Courtney (D-Conn.)
Rep. Langevin (D-R.I.)
Rep. Meehan (R-Pa.)
Rep. Kilmer (D-Wash.)
Rep. Takano (D-Calif.)
Rep. Payne (D-N.J.)
Rep. Allen (R-Ga.)
Rep. Ashford (D-Neb.)
Rep. Peters (D-Calif.)
Rep. Matsui (D-Calif.)
Rep. Larson (D-Conn.)
Rep. Denham (R-Calif.)
Rep. Bishop (R-Mich.)
Rep. Hunter (R-Calif.)
Rep. Smith (D-Wash.)
Rep. Meng (D-N.Y.)
Rep. Cramer (R-N.D.)
Rep. Clark (D-Mass.)
Rep. Boyle (D-Pa.)
Rep. Esty (D-Conn.)
Rep. Dold (R-Ill.)
Rep. Thompson (R-Pa.)
Rep. Lipinski (D-Ill.)
Rep. Messer (R-Ind.)
Rep. Jenkins (R-Kan.)
Rep. Moore (D-Wis.)
Rep. Smith (R-N.J.)
Rep. Clarke (D-N.Y.)
Rep. Watson Coleman (D-N.J.)
Rep. Carolyn Maloney (D-N.Y.)
Rep. MacArthur (R-N.J.)
Rep. Curbelo (R-Fla.)
Rep. Wasserman Schultz (D-Fla.)
Rep. Grayson (D-Fla.)
Rep. Corrine Brown (D-Fla.)
Rep. Takai (D-Hawaii)
Rep. Joe Heck (R-Nev.)
Rep. Cicilline (D-R.I.)
Rep. Joe Wilson (R-S.C.)
Rep. Frederica Wilson (D-Fla.)
Rep. Bennie Thompson (D-Miss.)
Rep. Peter King (R-N.Y.)
Rep. Sessions (R-Texas)
Rep. McKinley (R-W.Va.)
Rep. Slaughter (D-N.Y.)
Rep. Simpson (R-Idaho)
Rep. Kelly (D-Ill.)
Rep. Nolan (D-Minn.)
Rep. Holmes Norton (D-D.C.)
Rep. Capps (D-Calif.)
Rep. Zeldin (R-N.Y.)
Rep. Guinta (R-N.H.)
Rep. Miller (R-Mich.)
Rep. Walberg (R-Mich.)
Rep. LoBiondo (R-N.J.)
Rep. Tonko (D-N.Y.)
Rep. LaHood (R-Ill.)
Rep. Lance (R-N.J.)
Rep. Sean P. Maloney (D-N.Y.)
Nancy LeaMond, chief advocacy and engagement officer and executive vice president of AARP for community, state and national affairs, leads government relations, advocacy and public education for AARP’s social change agenda. LeaMond also has responsibility for AARP’s state operation, which includes offices in all 50 states, the District of Columbia, Puerto Rico and the U.S. Virgin Islands.
You can follow her on Twitter @NancyLeaMond.